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February
5, 1995 ~ March 9, 2003
About
Alexis and MCAD Deficiency
MCADD
On
March 6, 2003, Alexis became ill with
flu-like symptoms. That night when I put her to bed, I didn't
know that it would be the last time I would ever hear her sweet
voice tell me "I love you". The next morning, I woke to find
Alexis unresponsive. Immediately she was rushed to the ER. Test
after test was done, but still no answer came explaining why
Alexis was so sick. Days passed and her condition worsened.
On
Sunday, March 9, Alexis' life on earth ended. Six weeks
later, we found out what had taken this energetic, loving girl
with a smile that could melt your heart. It was a silent killer
called MCADD that had been living in her body since birth.
MCADD is a rare hereditary disease. Although rare, MCADD
occurs in approximately one in 10,000 live births and it is
deadly if undetected. If Alexis had been tested for this disease
at birth, along with the required newborn screening, she would
still be with us today. Death in children with MCADD is easily
avoidable. If diagnosed early, our children can live full and
happy lives.
Please
take a moment to read the attached information. Early detection,
through supplemental screening, can make all the difference
in saving our children. Ask your pediatrician for information
on how to get your child or newborn tested immediately. Several
labs offer an inexpensive supplemental
newborn screening process for 30+ hereditary diseases.
Please
tell your doctor you want your child tested for MCADD!
Thank
You,
The
Loved Ones of Alexis Nicole Knapton
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