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MCADD = Medium Chain Acyl-CoA Dehydrogenase Deficiency

Alexis Knapton picture

Alexis Nicole Knapton
February 5, 1995 ~ March 9, 2003

About Alexis and MCAD Deficiency

On March 6, 2003, Alexis became ill with flu-like symptoms. That night when I put her to bed, I didn't know that it would be the last time I would ever hear her sweet voice tell me "I love you". The next morning, I woke to find Alexis unresponsive. Immediately she was rushed to the ER. Test after test was done, but still no answer came explaining why Alexis was so sick. Days passed and her condition worsened.

On Sunday, March 9, Alexis' life on earth ended. Six weeks later, we found out what had taken this energetic, loving girl with a smile that could melt your heart. It was a silent killer called MCADD that had been living in her body since birth.

MCADD is a rare hereditary disease. Although rare, MCADD occurs in approximately one in 10,000 live births and it is deadly if undetected. If Alexis had been tested for this disease at birth, along with the required newborn screening, she would still be with us today. Death in children with MCADD is easily avoidable. If diagnosed early, our children can live full and happy lives.

Please take a moment to read the attached information. Early detection, through supplemental screening, can make all the difference in saving our children. Ask your pediatrician for information on how to get your child or newborn tested immediately. Several labs offer an inexpensive supplemental newborn screening process for 30+ hereditary diseases.

Please tell your doctor you want your child tested for MCADD!

Thank You,

The Loved Ones of Alexis Nicole Knapton

A special message from Alexis to all
Parents, Grandparents, Uncles & Aunts

The people who loved me so much on Earth really miss me. My baby sister, Mikenna, will probably not remember me, but I will always be thankful for the time I got to spend with her. God said I wouldn't have had to leave them to come to Heaven so young if they had known I had MCAD. I could have been hooked up to an IV with glucose or dextrose when I got sick and couldn't eat… and I would still be going to gymnastics and playing with my baby sister right now.

I can never come back to Earth. It's too late to save me, but it's not too late for other children to be diagnosed and saved from this silent killer.

You can Help. Help us get mandatory testing at birth for MCAD in your state. Get your children tested for MCAD if they haven't already been screened. It's just $25.00 and only takes a few drops of blood. If they have it, it's easily controllable… it's just an enzyme deficiency that means they can't skip meals, and if they get sick, they just need to have an IV. If your child has MCAD, you need to know about it.

Please read the stories on my website… and share this information with everyone you know.

For more information about MCAD visit




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